Publications

Books:

 

2012    Ethical Challenges in Genomics Research, Springer, Heidelberg, XIV + 232 pp, ISBN print 978-3-642-23698-3, e-ISBN 978-3-642-23699-0 review here

1999    Reading for Study and Research, Paula Boddington and John Clanchy, Longman, Australia

 

Journal articles and book chapters:

2014 ‘Clarity and fairness in harassment policy and practice’ Oxford Magazine, 348: 11 – 12 here

2013  ‘Ownership of biomedical information in biobanks’, Naomi Hawkins, Nadja Kanellopoulou, Jane Kaye, Karen Melham, Paula Boddington, Liam Curran, Heather Gowans, in Comparative Issues in the Governance of Biobanks, eds. G. Pascuzzi, U. Izzo, M. Macilotti, Springer, Heidelberg

2011 ‘Consent forms in genomics: the difference between law and practice’, Paula Boddington, Liam Curren, Jane Kaye, Nadja Kanellopoulou, Karen Melham, Heather Gowans,  Naomi Hawkins, European Journal of Health Law, 18, 1 – 29 abstract here

2011 ‘Neuroethics and the critical appraisal of our moral intuitions: a new kid on an old block’, Paula Boddington, Open Peer Commentary, American Journal of Bioethics Neuroscience, 2(2): 13 – 15 first page preview here

2010 ‘Relative responsibilities: is there an obligation to discuss genomic research participation with family members?’, Paula Boddington, Public Health Genomics, 13: 504 – 513 abstract here

2010  ‘Dietary choices, health and freedom: hidden fats, hidden choices, hidden constraints’, Paula Boddington, Open Peer Commentary, American Journal of Bioethics, 10 (3): 44 – 45 first page preview here

2010 ‘Repeating history: use and abuse of research findings and misattributions of responsibility for health’, Paula Boddington, Open Peer Commentary, American Journal of Bioethics, 10 (2): 57- 58 first page preview here

2010‘Assessing the privacy risks of data sharing in genomics’, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington, Jane Kaye, Public Health Genomics, 14: 17 – 25

2010 ‘Identifiability, genomics, and UK data protection law’, Liam Curren, Paula Boddington, Heather Gowans, Naomi Hawkins, Jane Kaye, European Journal of Health Law, 17, 4: 329 – 344 abstract here

2009 ‘Shared responsibility agreements: causes of contention’, Paula Boddington, pp 85 – 100 in Angus Dawson (ed) The Philosophy of Public Health: Aldershot, Ashgate, ISBN 978-0-7546-6043-9

2009 ‘Heart disease and social inequality: ethical issues in the aetiology, treatment and prevention of heart disease’, Paula Boddington, Bioethics, 23 (2): 123 – 130 abstract here

2009 ‘Theoretical and practical issues in the definition of health: insights from an Aboriginal Australian health definition’, Paula Boddington and Ulla Räisänen, Journal of Medicine and Philosophy, 34: 49 – 67 c 11 abstract here

2009 ‘Data sharing in genetics reshaping scientific practice’, Jane Kaye, Catherine  Heeney,  Naomi Hawkins, Jantina de Vries, Paula Boddington, Nature Reviews Genetics, 10 (5): 331 – 335

2009 ‘The ethics and regulation of direct-to-consumer testing’, Paula Boddington, Genome Medicine, 1(7): e71

2009  ‘Ethical implications of the use of whole genome methods in medical research’, Jane Kaye, Paula Boddington, Jantina de Vries, Naomi Hawkins, European Journal of Human Genetics, 18: 398 – 403

2009  ‘Public access to genome-wide data Five views on balancing research with privacy and protection, P3G Consortium, George Church, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington, Jane Kaye, Martin Bobrow, and Bruce Weir, PLoS Genetics, October; 5 (10): e1000665

2009 ‘Planning for translational research in genomics’, Naomi Hawkins, Jantina De Vries, Paula Boddington,  Jane Kaye, Catherine Heeney, Genome Medicine, September, 1 (9): e 87

2008 ‘The path forward for DNA data’, Paula Boddington, Naomi Hawkins, Catherine Heeney, Jantina de Vries, Jane Kaye, Science, 322, 1186

2008  ‘Adolescent carrier testsing in practice: the impact of legal rulings and problems with “Gillick competence”‘, Paula Boddington and Maggie Gregory, Journal of Genetic Counselling, 17 (6): 509 – 521

2008 ‘Communicating genetic information in the family: enriching the debate through the notion of integrity’, Paula Boddington and Maggie Gregory, Medicine, Health Care and Philosophy, 11 (4): 445 – 454

2008 ‘Preimplantation genetic diagnosis for familial hypercholesterolaemia: a commentary on the recent HFEA decision’, Paula Boddington and Michael Parker, Clinical Ethics, 3: 145 -148 abstract here

2007 ‘Communicating about haemophilia within the family: the importance of context and of experience’, Maggie Gregory, Paula Boddington, Rebecca Dimond, Paul Atkinson, Angus Clarke, Peter Collins, Haemophilia, 13: 189 – 198 abstract here

2006  ‘Troubles with biocitizenship?’, Alexandra Plows and Paula Boddington, Genomics, Society and Policy, 2(3): 115 – 135

2006  ‘The causation of disease – the practical and ethical consequences of competing explanations’, Ulla Räisänen, Marie-Jet Bekkers, Paula Boddington, Srikant Sarangi, Angus Clarke, Medicine, Health Care and Philosophy, 9: 293 – 306

2006 ‘Genetics’, Paula Boddington, Encyclopaedia of British Philosophy, eds Antony Grayling, Andrew Pyle, Naomi Goulder, Thoemmes Continuum

2006  ‘Working up policy: the use of specific disease exemplars in formulating general principles governing childhood genetic testing’, Paula Boddington and Susan Hogben, Health Care Analysis, 14: 1 – 13

2006 ‘The rhetorical construction of ethical positions: policy recommendations for non-therapeutic genetic testing in childhood’, Susan Hogben and Paula Boddington, Communication and Medicine, 3 (2): 135 – 146 abstract here

2006 ‘Commentary on Ruth Chadwick “Telling the truth about genomics”: hype and hope’, Paula Boddington, Communication and Medicine, 3 (1) 93 – 94 abstract here

2005 ‘Policy recommendations for carrier testing and predictive testing in childhood: a distinction that makes a real difference’, Susan Hogben and Paula Boddington, Journal of Genetic Counselling, 14 (4): 271 – 282

2004 ‘It’s only teeth – limits to genetic testing? A response to Aldred, Crawford, Savarirayan, and Savulescu’, Paula Boddington and Angus Clarke, Clinical Genetics, 66: 562 – 564

2004 ‘Returning to the Alder Hey Report and its reporting: addressing confusions and improving inquiries’, Steve Dewar and Paula Boddington, Journal of Medical Ethics, 30: 463 – 469

1998 ‘Self-deception’, Paula Boddington, Encyclopaedia of Applied Ethics, ed. Ruth Chadwick, Academic Press, Inc., San Diego, vol 4, 39 – 51

1998 ‘Organ donation after death – should I decide, or should my family?’, Paula Boddington, Journal of Applied Philosophy,15 (1): 69-82 abstract here

1996 ‘Organ donation and ethics: could Australia accept the Spanish model of organ donation?’, Paula Boddington, Monash Bioethics Review, 15 (2): 33-43

1994 ‘Confidentiality in genetic counselling’, Paula Boddington, in Angus Clarke, ed., Genetic Counselling: Practice and Principles, Routledge, London, 1994: 223-240

1993 ‘Issues in presumed consent’, Paula Boddington, Proceedings of the conference Transplantation: Asking the Hard Questions, ed. Lynn Gillam, Monash University Centre for Human Bioethics: 22-29

1992   ‘Reply to Anstotz: what we can learn from people with learning difficulties’, Paula Boddington and Tessa Podpadec, Bioethics, 6 (4): 361-364 first page preview here

1992 ‘Measuring the quality of life in theory and practice’, Paula Boddington and Tessa Podpadec, Bioethics, 6 (3): 20 -217

             Reprinted in Helga Kuhse and Peter Singer, eds, Bioethics: An Anthology, Blackwell, Oxford: Malden, Mass, 1999, ch. 30 abstract here

1991 ‘Who are the mentally handicapped?’, Paula Boddington and Tessa Podpadec, The Journal of Applied Philosophy, 8 (2): 177-190 abstract here

1988 ‘The issue of women’s philosophy’, Paula Boddington, in Morwenna Griffiths and Margaret Whitford, eds., Feminist Perspectives in Philosophy, Macmillan, London: 205-223

1979 ‘Why do girls underachieve?’, Trends in Education, 4, 24-28, Paula Boddington, Sue Kemp-Wheeler in collaboration with Corinne Hutt.

 

Official Publications and commissioned papers:

 

2009      Wellcome Trust Report ‘Issues arising out of the use of GWAS in medical research’, J. Kaye, P. Boddington, J. de Vries, H. Gowans, C. Heeney, N. Hawkins

1997      National Health and Medical Research Council, Australian Health Ethics Committee: Ethical Issues in Organ Donation:

                        1 Donating Organs After Death

                        2 Ethical Issues in Donation of Tissue by Living Donors

                        3 Ethical Issues Raised by Allocation of Transplant Resources

                        4 Certifying Death. The Brain Function Criterion

1994      ‘Euthanasia: Major Moral Issues’, Paula Boddington, commissioned paper submitted to the Select Committee on Euthanasia of  the Legislative Assembly for the Australian Capital  Territory.

Online and media:

2013 Nov 13th Future Health Systems Innovations for Equality website The Ethics of Emergent Knowledge Intermediaries

2013 June 29th Practical Ethics Blog Three person IVF

2013 28th June Sky News Interview on ‘Three person’ IVF

2013 April 19th Practical Ethics Blog Thoughts on assisted suicide

2012 Response to Arne Johan Vetlesen ‘Narratives of Entitlement’,

Norwegian Gunman Anders Brevik: Evil and Narratives of Entitlement

2011 Sparks London Story Café, The Button: Live at the Canal Cafe Theatre

2010 Oxford Bioethics Network podcasts:

Ethics and genomics research: introduction

Ethical issues raised by genome-wide association studies

Genome research, individuals and families

2010 Said Business School, Oxford University. Corporate Reputation:           Introduction to ethics: judgement, motivation, action

2009 Moderator, Oxford Online Debate: ‘The NHS should not treat self-inflicted illness’ www.oxford.ac.uk/debates

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